tag:blogger.com,1999:blog-5239665991629834606.post7675124488136988630..comments2024-02-24T21:08:24.026-06:00Comments on Positives About Negative: A Triple-Negative Breast Cancer DietPatricia Prijatelhttp://www.blogger.com/profile/08346233311451068354noreply@blogger.comBlogger85125tag:blogger.com,1999:blog-5239665991629834606.post-46834137062611656142017-05-20T07:01:59.208-05:002017-05-20T07:01:59.208-05:00First, so sorry for the slow response. I was trave...First, so sorry for the slow response. I was traveling and did not take my computer so couldn't get to the blog. Next time, email me, as I always have my blasted phone. Second, so sorry for the diagnosis. Do you have the book Life Over Cancer from the Block Center in Illinois? Their focus in on integrative cancer treatment and the book is full of suggestions for diet. So you might check out the book and, if possible, check out the center itself. The book has suggestions for a treatment support diet and some action steps that might make sense. If you have Amazon Prime, you can get the book ASAP: https://www.amazon.com/Life-Over-Cancer-Integrative-Treatment/dp/0553801147<br /><br />And the Block Center is at https://www.amazon.com/Life-Over-Cancer-Integrative-Treatment/dp/0553801147<br /><br />They do specifically mention vitamin D, but you can get a lot of that naturally right now. And from what I have read, more is not better, but you might supplement the sun with a normal 2000IU pill. Also, cruciferous veggies such as broccoli, cabbage, kale are excellent, but are antioxidants, so it might be good to talk to an integrative physician about how to moderate your intake to to interfere with treatment. <br /><br /><br />Hope this helps. If not, let me know.Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-18223732706722901792017-05-11T10:59:21.673-05:002017-05-11T10:59:21.673-05:00Hi Patricia,
I read your book when I was first dia...Hi Patricia,<br />I read your book when I was first diagnosed with TNBC a year and a half ago. Now, I have a recurrence and I'm stage IV (liver, lymph nodes behind my sternum and potentially in my lungs). I have been given a year to live. I will be starting chemotherapy (nab-Paclitaxel) and immunotherapy as part of a clinical trial tomorrow. I have been told to limit my intake of anti-oxidant rich foods while on the trial. I understand why that is, but I feel that it is unfair not to let me be as healthy as I can possibly be. I have learned not to tell the clinical trials nurse that I eat things like matcha or goji berries because, as soon as they find out, they tell me to cut it back. I have been taking vitamin D (10000 IU). I was wondering if you could tell me how much you recommend and also if there are diets tailored more to reducing metastases. I guess I am already on a low methionine diet since I was vegetarian and am now vegan - with the exception of a little wild salmon or trout. I love dessert and have completely eliminated that. I have two young daughters and I would like to live for them, so any help you might offer would be much appreciated. Thanks so much for writing your book!baking obsessedhttps://www.blogger.com/profile/06464727241573392392noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-62078845869598476072014-12-02T09:07:12.087-06:002014-12-02T09:07:12.087-06:00I can't suggest therapy, but you do have a gre...I can't suggest therapy, but you do have a great prognosis, similar to mine. I had chemo, but only AC, and eight years later, I am still here with NED. But all cases are different. Ask for a second opinion if you don't trust the suggestions of your doctor. Do you have my book? You can order it on my blog--it is in the right column. I offer several profiles of women with TNBC and their choices of treatment. A couple did not do chemo--one because of a bad reaction to it, one because her doc did not prescribe it. All the rest of us had it, though. There is no targeted therapy for TNBC, so chemo is all we have--and it works. Again, all cases are different.<br />Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-5880032475677198642014-12-02T02:21:52.045-06:002014-12-02T02:21:52.045-06:00Hello,
Recently had left breast mastectomy and tu...Hello,<br /><br />Recently had left breast mastectomy and tumor size is 2cms. All Lymph nodes are clear and No Metastasis.Diagnised as T1N0M0 and TNBC. Is there any risk if not opted for Chemo? Please suggest whether ot not to go for chemo.<br /><br />Thanks!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-8546225517826486062014-11-11T11:59:09.999-06:002014-11-11T11:59:09.999-06:00I periodically check into Patricia's blog, did...I periodically check into Patricia's blog, did so today and read many of the comments written over the past few years. Thank you Patricia for continuing to support so many survivors. I was diagnosed in '08, 2cm 1 node, 4 chemos and radiation, wall recurrence in '10 in 2 places, right mastectomy--and I have been clean every since and no more treatment. I followed the Keith Block Center diet, exercise plan, alkaline water and blood test/supplement regimens and still do. I have never felt better. I am 70 and still working full time. I believe that Block regimen has made the difference. Never give up and never under estimate the power of nutrition, exercise, supplements and fight. Penny CPenny Cuninggimhttps://www.blogger.com/profile/14846910281553070537noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-71236531869863673992014-06-18T15:57:38.077-05:002014-06-18T15:57:38.077-05:00Ally: I strongly believe in listening to your bod...Ally: I strongly believe in listening to your body, and it is telling you to take a break from chemo. Abraxane has shown good results for TNBC, but it also has side effects. Meanwhile, have you tried dietary changes and homeopathic approaches to your infection? Some foods, such as mushrooms, can make yeast infections worse. Some resources to help: http://www.webmd.com/women/10-ways-to-prevent-yeast-infections<br />http://www.disabled-world.com/artman/publish/candida_.shtml<br /><br /><br />Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-45059134794915426962014-06-14T19:30:42.467-05:002014-06-14T19:30:42.467-05:00I am 44 years young and was diagnosed Stage Ib, Gr...I am 44 years young and was diagnosed Stage Ib, Grade 3 TNBC in December 2013. Lymph nodes were clean. I had a double mastectomy in January 2014. The post-surgery pathology report indicated that all cancer had been removed in the initial biopsy. In March, I began 4 cycles of chemotherapy - Adriamycin and Cytoxin. This was supposed to be followed by Taxol, but I had an immediate allergic reaction. I have not had any chemotherapy for nearly 6 weeks as I have a horrid yeast infection and the medications have not worked. The MO wants me to start Abraxane. I am struggling with whether to continue the chemo regimen. Fear is a powerful motivator but the chronic, unresolved infection has me very concerned. I also have iron-deficient anemia. I could really use some guidance on dealing with the iron-deficiency, anemia, and infection. Many, many thanks to you for this positive blog and opportunity,Ally Khttps://www.blogger.com/profile/00974525625490153186noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-25698659794458434252014-05-26T23:00:15.241-05:002014-05-26T23:00:15.241-05:00If you are uncomfortable with your doctor's ad...If you are uncomfortable with your doctor's advice, get a second opinion ASAP. You deserve that.Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-62642029596811358902014-05-26T20:45:56.172-05:002014-05-26T20:45:56.172-05:00I'm scared Im stage 1 IDC lumpecty removed 7 ...I'm scared Im stage 1 IDC lumpecty removed 7 lymph nodes all clear margins good 2mm tumor. Oncologist felt chemo wasn't need everything ive read no matter the size chemo was used for treatment. Brca 1 negative as well. I'm doing 36 rounds of radiation..Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-73268164562224933692013-08-07T08:54:28.601-05:002013-08-07T08:54:28.601-05:00Hi Pat,
I've been sitting here in tears ...Hi Pat, <br /><br /> I've been sitting here in tears after reading all the bad stuff about being triple negative. I just learned yesterday, after meeting with my doctor for post op. I am stage 1, grade 3, all lymph nodes were clear. So I felt pretty good about everything until they told about being triple negative. I meet with the oncologist on fri. to discuss chemo. I know the Lord is with me, I do get fearful at times as I have 4 children. I need to be here for them. God bless you for helping us. NicoleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-6055948563933025782013-07-30T08:15:54.177-05:002013-07-30T08:15:54.177-05:00Hi Pat:
I found your blogger site last year when...Hi Pat:<br /><br /> I found your blogger site last year when I was going through chemo. Followed with 33 radiation treatments. I was stage 2 Triple Negative, three lymph node involvement. I had/have clean margins. I was diagnosed at 65, May 24, 2012, I don't have the BRAC gene; tested for 1 & 2. My sister did die of inflammatory carcinoma at the age of 50, 21 years ago.<br /><br />I was always a healthy eater, but did like my frozen yogurt at night and my red wine. I have tweaked my diet to be healthier. I follow a low fat diet, eat plenty of salads, fruits, grains, chicken, salmon, and take vitamins. I do eat organic foods and wash all foods. I still have my wine, but only when I go out. I treat myself to ice cream on occasion. <br /><br />I stay as healthy as I can, have a good attitude and am looking forward to a long, cancer free life. <br /><br />I am a lucky woman, I still have my mom who is 90. She had stomach cancer, and has heart disease. She just had cataract surgery so she can see better.<br /><br />I have a lot to be thankful for and will not let this bump in the road stop me from living.<br /><br />Thanks,<br /><br />LyndaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-34438522657724593922013-07-23T21:54:26.417-05:002013-07-23T21:54:26.417-05:00Hi Patricia! Just stumbled upon your blog. I was d...Hi Patricia! Just stumbled upon your blog. I was diagnosed with TNBC last September. Lumpectomy, chemo and radiation. Finished radiation May 28, 2013 - started having breathing issues 3 weeks later. Was hospitalized for a week; came out on time for my oldest daughter's graduation. Barely 2 weeks later, I experienced major SOB (gotta love that term!! Shortness of breath!! :-) ) just got out of the hospital after one week and guess what, the cancer has spread to my lungs and liver. Not that I want to rain on anybody's parade!!! My medical team is totally under shock and you can imagine so is my family. Everything had gone so well!! I am the exception to the rule. Having 2 teenage daughters made it even harder, but after the tears last week, I got back in the fighting mode. I started chemo again yesterday; we were always into healthy eating, but even more now! Cut out dairy, meat, booze, fats (except olive oil and sesame oil for my tofu!); extra servings of veggies, kale, ginger, turmeric, garlic, chilies or hot sauce, juicing, you name it. Luckily I have the best husband who always was a veggie freak!!! We are also looking at some alternative treatment. Will keep you posted. Ciao for now!Isabellenoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-23315107187450402732013-07-23T12:21:36.731-05:002013-07-23T12:21:36.731-05:00Lumpectomies followed by radiation have been shown...Lumpectomies followed by radiation have been shown to be as effective as mastectomies in most women--and I think that would include you, with your stage cancer. And your prognosis should be excellent, with clear margins and no spread. Yay! The asian diet is often good for cancer, even if you can't do the typical fruits and veggies here. The fact that you usually have low-fat diets high in omega 3s is a great thing.Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-47308838249314651182013-07-20T04:21:45.933-05:002013-07-20T04:21:45.933-05:00Hi pat! Ima 26yrs old unmarried asian girl..i was ...Hi pat! Ima 26yrs old unmarried asian girl..i was diagnosed with TNBC stage 2a,grade 3..i had lumpectomy with clear margins in june...what do you think i would survive it? And should i have to had mastectomy rather than lumpectomy? And also being living in asian country most of fruits and veggies you have mentioned in your diet plan are not available in my country..what to do then?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-41422317101893710992013-05-26T23:57:40.605-05:002013-05-26T23:57:40.605-05:00just discovered this website as i continued to bro...just discovered this website as i continued to browse and research info about my situation.I am a 52 year old black nigerian diagnosed of triple negative stage 3c breast cancer in march 2012.i have since done surgery(9 nodes involved),chemo,and about 36 radiation sessions which concluded in nov 2012.I live in Nigeria ,though i received all treatment in the USA under a private cost as i did not have insurance,so this drained me financially.MY Oncologist seems to keep a track on we with the CEA TEST results of which was 7 very recently.The pet/cat scan done in feb 2013 showed no sign of spread to any organs ,but my oncologist is concerned about the CEA at 7 and does not want to call for another pet/cat scan as i have done 3 in the last one year.I have had to change diet and lifestyle for the better. But i am really worried about the CEA results that refuse to go down.Though i feel well,but we all know that a lot goes on even when the decease is not noticed.Can someone out there tell me what is going on and what other tests will help monitor my degree of cure.I have all the info about what to eat and what not to eat.I have been on bigwig protocol/high fruit and veg/essiac tea/pawpaw leaves/lemon rind therapy for about 3 months and i feel good.My major concern is why the CEA remains high.What other test can tell me the progress report.?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-63608101301678164482013-02-16T07:02:57.847-06:002013-02-16T07:02:57.847-06:00Thanks so much, Lyn. I am glad the book helps and...Thanks so much, Lyn. I am glad the book helps and really appreciate your support in promoting it. Yes, we are all different and researchers are really making that point. I have not read about the fasting diet. I will have to check that out. I am not a big fan of fasting generally, but know of others who swear by it. (As I said, we are all different,) Hugs.<br />Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-21670944544724573162013-02-16T02:09:59.235-06:002013-02-16T02:09:59.235-06:00Hi Bridgette
I share your anxiety of having lymph...Hi Bridgette<br /><br />I share your anxiety of having lymph nodes involved. I had 2/12 but one was massively infected, thats their words and i think it said vascular too so im in same position. Im newly married, 39 with a one year old boy and i cant bear to think of anything else but beating this. Patricia's book has been my saving grace and whenever i feel scared i read all the positive information and remind myself we are all different and you can not medicalise the human will to live and win! <br /><br />My mum had ovarian cancer and after diagnosis the Dr gave her 6 months, she lived 7 years! Its ok to be scared, we all are, but try to channel any negative energy into fighting, as there are lots of people who had positive nodes that live on cancer free but they just dont come to these sites to write about it, they are busy living.<br /><br />Patricia just want to thank you for your book. Im part of a younger womens network or BC where many young women are TN. Ive posted about your book as i think its the best therapy money can buy for TN. Thank you for taking the time to research and write about it.<br /><br />An interesting area of research i have recently found is intermittent fasting and cancer, especially the impact on IGF-1 hormone, have you read about it? Also the impact it has during chemo and on side effects. I'd be interested to hear your thoughts. Im on the path of trying anything to help so my intermittent fasting has begun under the guidance of Dr Michael Mosely who as published a book called 5:2 diet. To me it just makes sense, there is definitely something in it so im giving it a go as ive nothing to lose. I have 4 chemo's left and will keep you posted of my side effects. My last chemo came with horrendous Side effects so im hoping i will see quite a difference.<br /><br />Once again thank you so much for all the hard work you do for TN... You truly are an angel!<br />Lyn xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-37070408923502148692013-01-22T17:42:13.218-06:002013-01-22T17:42:13.218-06:00Bridgette:
I am glad you like the book and that...Bridgette: <br /><br />I am glad you like the book and that it has been helpful. Thanks so much for writing.<br /><br />Several of the women in the book had affected lymph nodes--especially Rebecca, the first one I profiled, and she is more than 30 years past DX. There is more and more evidence that affected lymph nodes are really not a predictor of serious disease, so I would not make that my focus.<br /><br />I presented the information from research about aspirin and Metformin but am not really recommending them. I do not take either. I can't take aspirin as it really does a number on my stomach. And Metformin has not been approved as a cancer drug. That could be in the future, but it is not on the table now.<br /><br />I hope that makes sense.<br /><br />Pat Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-1554038385531021042013-01-22T16:16:51.334-06:002013-01-22T16:16:51.334-06:00Hi Pat
I bought your book online this weekend ( fo...Hi Pat<br />I bought your book online this weekend ( for Kindle) and have not been able to put it down, it is filled with great info and such an easy read. Thank you for putting this together for those of us that are TN. <br />I was dx in May 2012 stage 111, grade 3. I am 52 and was in good health at time of diagnoses, exercising regularly and not carrying any extra weight , had also just had a routine mammagram 3 weeks previously which was clear , so when I found a lump under my arm, and I was susequantly dx, this all came as a big shock. <br />I have just last week completed 20 sessions of radiation, having had a lumpectomy ( 2.2 cm tumour) and a axillary dissection 6/17 in June 2012, followed by 16 weeks of chemo FEC and docetaxol. I do spend a great deal of the internet searching for some encouragement that there is still hope for someone like me who is TNBC with positive nodes. Whenever I come across longtime survivors who are TN, they dont seem to have had lymph nodes involved. I am really desperate to connect or hear about others with more than 4 positive lymph nodes who have made the 3 year mark. I feel like I am grasping at straws here. I try so hard to be positive, and I am generaly a v positive person but I am finding this very difficult. <br /><br />I your book you mentioned taking baby Asprim - 3to 5 days a week, do you suggest the coated or uncoated type. And you also talked about Metformin - I have read about this trial, but would rather take this medication independantly, have you heard much about other doing this . <br />I look forward to hearing from you , and thank you again for your great blog. <br />Bridgette ( Canada) bridgettehttps://www.blogger.com/profile/14617096370976517498noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-83557418835799476952013-01-22T14:40:33.754-06:002013-01-22T14:40:33.754-06:00Hi Pat
I bought your book online this weekend ( fo...Hi Pat<br />I bought your book online this weekend ( for Kindle) and have not been able to put it down, it is filled with great info and such an easy read. Thank you for putting this together for those of us that are TN. <br />I was dx in May 2012 stage 111, grade 3. I am 52 and was in good health at time of diagnoses, exercising regularly and not carrying any extra weight , had also just had a routine mammagram 3 weeks previously which was clear , so when I found a lump under my arm, and I was susequantly dx, this all came as a big shock. <br />I have just last week completed 20 sessions of radiation, having had a lumpectomy ( 2.2 cm tumour) and a axillary dissection 6/17 in June 2012, followed by 16 weeks of chemo FEC and docetaxol. I do spend a great deal of the internet searching for some encouragement that there is still hope for someone like me who is TNBC with positive nodes. Whenever I come across longtime survivors who are TN, they dont seem to have had lymph nodes involved. I am really desperate to connect or hear about others with more than 4 positive lymph nodes who have made the 3 year mark. I feel like I am grasping at straws here. I try so hard to be positive, and I am generaly a v positive person but I am finding this very difficult. <br /><br />I your book you mentioned taking baby Asprim - 3to 5 days a week, do you suggest the coated or uncoated type. And you also talked about Metformin - I have read about this trial, but would rather take this medication independantly, have you heard much about other doing this . <br />I look forward to hearing from you , and thank you again for your great blog. <br />Bridgette ( Canada)bridgettehttps://www.blogger.com/profile/14617096370976517498noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-36000078831085446892012-10-29T12:39:08.354-05:002012-10-29T12:39:08.354-05:00Stage II TNBC is quite survivable. Yes, it is ide...Stage II TNBC is quite survivable. Yes, it is ideal to have clear margins, but even without that, the odds are with you. There is great hope for your situation. Does the doc plan to do chemo?Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-60878741134602308322012-10-29T01:12:44.951-05:002012-10-29T01:12:44.951-05:00I am very encouraged by your site and thank you fo...I am very encouraged by your site and thank you for all your research into this horrid disease.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-44143894055149709562012-10-29T01:11:37.436-05:002012-10-29T01:11:37.436-05:00I am newly diagnosed with tnbc. I had a lumpectomy...I am newly diagnosed with tnbc. I had a lumpectomy where the margins were mostly good except for the posterior where the surgeon said she had gone right up to the chest wall and couldn't go any further - the margin in this area is a mere 0.5mm. I see an oncologist on tuesday and am dreading chemo. I have stage 2, grade 3, IDC tumour size 2.2cm, with DCIS tumour size 2.9cm. 2/3 lymph nodes have isolated tumorr cells and there is lymph vascular invasion present. Is there hope for my situation? I am terrified.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-25433530099921285062012-10-16T16:27:59.319-05:002012-10-16T16:27:59.319-05:00I believe strongly in fish oil, but I haven't ...I believe strongly in fish oil, but I haven't read enough to convince me of GLA or hemp oil capsules. If anybody has research to share on this, I would greatly appreciate your posting it. Thanks much!Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.comtag:blogger.com,1999:blog-5239665991629834606.post-55311918727324768202012-10-16T16:25:08.076-05:002012-10-16T16:25:08.076-05:00One of the most frustrating things for me about th...One of the most frustrating things for me about this blog is that I cannot always contact the women who write to me through it. I can if they have a Google account and leave that information. And I do try to respond. But I don't always know how things unfold for my beautiful friends out there, so I don't know the progress of the woman who wrote in last year. If you are dealing with a recurrence, I would get to the best cancer center I could--whichever is closest to you, ideally one connected to a university. There might also be clinical trials you can enroll in. I hope that helps. And I hope that we hurry up and get targeted treatment for metastatic TNBC.Patricia Prijatelhttps://www.blogger.com/profile/08346233311451068354noreply@blogger.com