This plane is full of doctors. I know this because, when a woman faints two
seats in front of me and the flight attendant asks for a doctor, about half the
passengers stand up. They are all going from Chicago to the San Antonio Breast Cancer
Symposium, which is where I am headed.
The woman has diabetes and her blood sugar is
seriously off balance. The doctor
sitting in front of her gets her orange juice, a little sugar, and she starts
to respond. He is calm, kindly, a man
you would trust with your life. If I ever get sick again, I think, I want him. Apparently once a cancer patient, always a
cancer patient, on the lookout for the best docs.
Ultimately, the doctor stabilizes the woman, so we continue
on our way. And then I realize that
all these docs are sitting back in coach class with me. It makes me like them more. These folks are
real people. Of course, the plane is so
small it could be wrapped and put under a Christmas tree, and there are
probably only six seats in first class, so that was not an option. Still, they are sitting here in the cheap
seats with me. Good for them.
The woman next to me is an oncologist and we share our
experiences with triple-negative breast cancer, which is the subtype I had and
the type I write about. She treats me
like a colleague, takes me seriously, applauds my research on the disease,
tells me about some of her patients and TNBC.
When the plane lands, we exchange business cards. I plan to communicate with her to continue our
conversation, ask her about the young woman she mentioned whose cancer had
recurred, perhaps ask if she would be a sounding board for some of the questions I get that are beyond my level of understanding.
This is a new experience for me, hobnobbing with the
doctors. I have been a patient, going
through the full plate of cancer treatments, so I have had close interaction
with my surgeon, several oncologists, and a radiation oncologist. But the patient-doctor relationship,
logically, and of necessity, is unequal.
They are the experts, we are not, although it is our body going through
all of this. After treatment, I began researching TNBC,
first for my own benefit, then as a blog, and a book. But I had my nose in research papers and my
work was solitary, done in my home office, interviewing the experts on the
phone.
This business of sitting next to them and talking cancer, this
is all new.
At the symposium, I sit in a packed ballroom while researchers
explain how genetic research demonstrates that TNBC is not one disease, but
many, and that they are getting wonderfully close to understanding how the
subsets within subsets behave, which will ultimately lead to targeted drugs.
Yay! I think. I take copious notes and look forward to
translating this in subsequent articles.
As I walk out of the ballroom, I talk to another oncologist and ask for some clarification of the research. He is thoughtful, helpful, appreciative of my interest, and he takes me seriously.
I am learning a great deal.
My head is sparking with what I have soaked in just this afternoon. My feet hurt and my back is sore from carting
my computer around. But it is worth
it.
And the big lesson today is that this symposium teems with
good people. Folks with amazing brains
who are using them to help make us healthy. Nice people who really want us to understand
what they’re discovering.
I’ll write more soon about the
information they have shared, but for now, the fact that they are working hard
and smart to understand this tricky form of cancer gives me great hope. And, while I want the information, I crave
the hope.
Read more about TNBC in my book, Surviving Triple-Negative Breast Cancer.
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3 comments:
Thank you for sharing your experience in this amazing event! I wish I were there to take part in this! I just lost my best friend to TNBC on week prior to Thanksgiving.
Thank you for sharing your lovely experience and what you've learned at the conference. I just lost my best friend to TNBC 2 weeks ago tomorrow!
I am so sorry about your friend. This disease has taken way too many people from us and it is time for us to stop it all. I am hopeful that new treatments are near.
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