Thursday, June 13, 2013

Looking for a Clinical Trial for TNBC?

Are you looking for the TNBC clinical trial that most suits your needs and for which you are eligible?  A researcher at Harvard, Maytal Bivas-Benita, is currently designing a portal that patients can use in their search for trials, but she would like your help.
What challenges are you encountering on your search?  Maytal would love to talk with you, help you with your research, and use this to help others.  As she says, she would be your personal scientific consultant.
Here’s how she explains it:
My aim is to provide the patient with a basic understanding of the drug that is being tested, the possible mechanism of action, the relevance to TNBC, outcome in other indications (if available) and potential side effects (if previously identified). This information will give patients a better idea of what they are getting into. 
Different patients will have different considerations in selecting a trial (such as distance from home, reputation of the clinical site, potential benefits, potential toxicity, etc). It is up to each patient to make the right decision by carefully considering all their options. 
I am in the early stages of developing this approach and I would like to work together with patients who are looking for clinical trials. This will help me learn and understand the decision-making process. I am not a medical doctor, I am a scientist with a broad pharmaceutical background and extensive research experience. You can think of me as your personal (free) scientific consultant.
If you are interested in talking with Maytal, you can email her at maytalb@mac.com

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